Narcolepsy Support Group Meet Up - Dublin

We have organised an informal get-together for all Narcolepsy sufferers and their families, friends or anybody who is interested in the subject.

DATE : SATURDAY, JUNE 12TH, 2010.

TIME : 1.30 p.m. TO 4.00 p.m.

VENUE : DANDELION CAFE BAR AND RESTAURANT , St. Stephen's Green, Dublin 2.

The idea is to chat about our experiences and exchange coping mechanisms that we use in our daily lives. Sleepy-Heads and family members of all ages are welcome.

As Narcolepsy is an uncommon condition, most of us have no contact with other sufferers. This has the effect of making us feel isolated and alone. It is also very difficult to explain our symptoms to non-sufferers as there are so many idiosyncrasies that define us as Narcoleptics.

As a committee, we have met a number of times and always end up discussing our personal experiences after meetings. We came to the realisation that we learn so much from each other that it would be a worthwhile exercise to hold a meet and greet session where we could all get together for a chat in an informal setting.

Dandelion is situated on the Grafton Street Side of Stephen's Green, between the Stephen's Green Shopping Centre and the Fitzwilliam Hotel.

It has a full bar and also serves tea/coffee. There is an extensive, reasonably priced bar menu. It also has a full restaurant, should anybody choose to avail of it.

So, put the date in your diary. Myself and the other Committee Members - Sheila and Orla - are looking forward to meeting you there !

Miriam

Narcolepsy Website Finally Launched!

Well - it's finally here !
I hope you will agree that the new site was worth waiting for. Our aim was to make it as attractive and user-friendly as possible. It is very easy to navigate, which was a priority for us. It is very annoying and frustrating to have to trawl through page after page looking for an item, so we tried our best to avoid this. We wanted to get anywhere on the site in as few 'clicks' as possible. I think we have achieved this.

Our Forum is also 'open for business'. Please feel free to use this. You must register to use the Forum. To 'post' on the page, you can use any name you want, it does not have to be your real name. Your registration details are strictly confidential and will never be shared with anyone. You can open a 'thread' under any of the headings we have set. The only rule is that it must be appropriate and non-abusive. If any entry is deemed to be offensive it will not be posted and the user will be banned from using the site.

Finally, this is YOUR website - we are only here to facilitate it. Please feel free to submit items for the Blog page, the news page or anything else you feel like telling us about. We have all had comic moments due to our illness - why not share some and cheer us up by making us laugh. We would welcome your comments about the site and any suggestions you may have. We have included anything that we could think of that may be of interest to our Members. If there is anything you want to see on the site - just let us know. We will always be happy to get feedback.

So now, go ahead - read, use and enjoy. We will keep the site as topical and as up to date as we can but in the end it is up to you, our Members, to keep the site going and not to let it stagnate and eventually die. Happy reading one and all !
Miriam.